Angel "Sebas" Careaga
Hello my name is Luis and my wife's name is Patty. We have 3 beautiful boys, Luis Jr 14 yrs, Angel 8yrs , and Emiliano 5 yrs. and we live in Garland, Tx.
Angel or as we all call him, "Sebas", was first diagnosed with seizures ("Infantile Spasms")when he was 5 months of age. After several different medications, neurologists hit the jackpot with a steroid by the name of "ACTH". The seizures were gone. Because of the steroid shots Sebas had to take daily, he became very obese. He grew hair from his facial area all the way down there as a normal teenager would. He also had acne, blackheads, and ulcers to name a few side effects. But everyone in our family was greatful the seizures were gone, for a couple years.
When Sebas was 6yrs old the seizures came back. They initially started as small seizures ("Focal Seizures") and have gradually evolved to the bigger seizures ("General Seizures"). Sebas has had developmental problems since he was an infant due to his condition and currently still does. At this present time Sebastian is diagnosed with "Lennox-Gastaut Sydrome" and "Mixed Epilepsy". He has seizures that are difficult to control with medications. He is currently taking 3 anticonulsants and awaiting a fourth one depending on tomorrows nuerologist appointment.
This year was the roughest by so far for our son and our family. In April of 2010 Sebas had a severe allergic reaction to an anticonvulsant and had to be treated for severe skin burns. His outer skin layer, "epidermis", blistered throughout his entire body. The inside of his mouth blistered and the inside of his eyes did to. He had to be treated by a burn unit and dermatologists to treat his skin burns. He was then diagnosed with "Stevens-Johnson Sydrome" severe allergic reaction to anticovulsants. After several days treating his skin and fever in the hospital, he was good to go home. My wife and I feared the worst as we saw our son suffering but never did he complain of pain to us or the doctors. We admire him for always being brave. He is to us as I tell everyone, our little warrior.
And here we are now almost the end of 2010 and we are going to Disney World. We are greatful for this gift to our son and family. Thank you for this great gift. See we beleive in angels and from everyone at our son's school, hospitals, and your radio station, you are all like angels looking over our son.
Thank you,
Luis A, Careaga
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